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Arabic version of Juvenile Arthritis Multidimensional Assessment Report (JAMAR): A new approach to clinical care of juvenile idiopathic arthritis



Article type: Published article

Abstract

Background: Juvenile idiopathic arthritis (JIA) is a chronic multisystem disease that affects the health-related quality of life. Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is an important clinical assessment tool valid in English, measures the impact of JIA in children. It is critical to have a quality of care tool that is applicable for JIA children in Arabic countries. Objective: To report the translation and cultural adaptation process undertaken by our team to make JAMAR available in Arabic. Methods: Translation procedure consisting of forward and backward translation of JAMAR and revisions; and cultural adaptation of JAMAR content Results: We completed thetranslation of JAMAR (parent's and patient's versions) into Arabic language. Translations from English done by three independent translators into Arabic language using wording to be understood by an 8-10-year old child (for the patient version); the first unified version of JAMAR back-translated by two independent back-translators with English as their first language. All the forward and backward translators finally met and reach the final consensus among the translators for a final unified version of JAMAR in Arabic language. The final Arabic version has been tried in 10 patients and 10 parents using the probe test technique. The were only two questions required modification. Conclusion: The development of the JAMAR in Arabic language will introduce a new approach in pediatric rheumatology practice in Arab countries and hopefully will enhance the quality of care of children with JIA. We are in the process of validation in diverse patient series.


Full citation

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Methodology

Methods Condition Gender Age Country Setting Sample size
juvenile idiopathic arthritis and their parents Both Healthcare Facility 10

Number of items

40 items

Training

Measure does not require training

Required time

6-30 min

Access measure

mayouf@kfshrc.edu.sa






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Articles last updated: March 2020