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Acronym
PAID

Description
First created and validated in the 1990s to measure and assess diabetes related burden in adults with diabetes. A brief self-report scale that evaluates diabetes-related emotional distress. PAID is a self-administered 20-item scale. Each item is scored from 0 (not a problem) to 4 (serious problem). The sum of all item scores multiplied by 1.25 gives the total PAID score, which ranges from 0 to 100, higher scores reflecting greater emotional distress. A score of 40 or above is indicative of severe emotional distress (Hermanns et al,2006)

Area of assessment
Mental health, Quality of life.

Condition
Metabolic /endocrine.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Alragum, S. N. 2008 55 - above Both diabetic, healthy Kuwait
240 Contact Author

Acronym
FACT-BMT

Description
A measure of five dimensions of quality of life in bone marrow transplant patients. FACT-BMT is a combination of two tools; functional assessment of cancer therapy-general (FACT-G) which assesses the effects of cancer therapy in the four major areas of physical, social/family, emotional and functional well-being and the BMTS assesses specific BMT related concerns .

Area of assessment
Quality of life.

Condition
Oncology.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Soudy, H. 2014 Both relapsed /refractory lymphoma patients Saudi Arabia
108 Contact Author
Soudy, H. 2018 14 - 62 Both patients Saudi Arabia
108

Acronym
SMILY©-illness

Description
A health-related quality of life scale for children that addresses the impact of systemic rheumatic diseases such as mixed connective tissue disease, juvenile dermatomyositis ,systemic sclerosis, Sjögren’s syndrome, vasculitides,Behçets, sarcoidosis or systemic arthritis.Adapted from the Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY©).

Area of assessment
Quality of life.

Condition
Orthopedic /rheumatology, Pediatric.

Age Group
Child/adolescent- 0-19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Moorthy, L. N. 2014 2 - 18 Both systemic lupus erythematosus Egypt
Saudi Arabia
Free
Moorthy, L. N. 2012 Both rheumatic diseases Egypt
Saudi Arabia

Acronym
CIAQ

Description
A questionnaire which includes: 10-items scale to assess functional impairment (CIAQ-FI), and 10-items to assess quality of life (CIAQ-QoL) in patients with inflammatory arthritis.

Area of assessment
Activities of daily living, Function/disability/performance, Quality of life.

Condition
Orthopedic /rheumatology.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
El Meidany,Y.M. 2013 Both inflammatory arthritis Egypt
284

Acronym
FACT-Th18

Description
Evaluates the quality of life (QOL) of cancer patients with thrombocytopenia.

Area of assessment
Quality of life.

Condition
Hematology, Oncology.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Arnold, B. 2012 mean-46 Both thrombocytopenia Not available

Acronym
BAS-G

Description
The BAS-G is a global assessment which reflects the effect of Ankylosing Spondylitis on patients' well-being over a particular period of time. It consists of two questions which ask patients’ to indicate, on a 10cm VAS the effect the disease has had on their well-being over the last week last six months.

Area of assessment
General health, Mental health, Quality of life.

Condition
Orthopedic /rheumatology.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
El Meidany,Y.M. 2008 24 - 61 Both ankylosing spondylitis Middle East
Morocco
73

Acronym
JOABPEQ

Description
A self-administered, disease-specific measure developed with reference to the Japanese editions of SF-36, and the Roland-Morris Disability Questionnaire (RDQ) to assess health-related quality of life. Items were categorized into five factors. The factors were named based on the commonality of the items: social function, mental health, lumbar function, walking ability, and low back pain.

Area of assessment
Function/disability/performance, Pain, Activities of daily living, Mental health, Quality of life, Social.

Condition
Orthopedic /rheumatology, Rehabilitation.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Alfayez, S.M. 2017 10 - 72 Both patients Saudi Arabia
151

Acronym
KDQOL-SF™ v1.3

Description
The KDQOL-SFTM version 1.3 combines the generic SF36 instrument with the kidney disease specific instrument. The questionnaire consists of 80 items divided into 19 dimensions. The disease specific component of KDQOL-SFTM 1.3 includes 43 kidney disease targeted items. They comprise 11 domains, including: symptom/ problem list (12 items), effects of kidney disease (8 items), burden of kidney disease (4 items), cognitive function (3 items), quality of social interaction (3 items), sexual function (2 items), sleep (4 items), social support (2 items), work status (2 items), patient satisfaction (1 item), and dialysis staff encouragement (2 items). SF-36 includes 36 items that measure eight domains of functioning and wellbeing

Area of assessment
Quality of life.

Condition
Renal.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
ElHafeez, S. A. 2012 42 - 60 Both predialysis patient Egypt
100 Free

Acronym
NEI-VFQ-25

Description
The NEI-VFQ is a broad, vision-targeted questionnaire used in the assessment of visual impairment. It has initially been developed by the National Eye Institute in order to match the need for a new tool to assess the extent of visual impairment in patients with various chronic eye conditions of moderate to high severity. It is composed of 12 subscales: general health (1 item), general vision (1 item), ocular pain (2 items), near activities (3 items), distance activities (3 items), vision-specific social functioning (2 items), vision-specific mental health (4 items), vision-specific role difficulties (2 items), vision-specific dependency (3 items), driving (3 items), color vision (1 item) and peripheral vision (1 item). captures the physical, emotional and social aspects of visual disability, Thus, it assesses all aspects of quality of life (QoL) .

Area of assessment
Function/disability/performance, Quality of life.

Condition
Eye/vision.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Abdelfattah, N. S. 2014 54.5 +/-15 Both bilateral chronic eye disease Egypt
379
Elsahoryi, N 2021 18 - 50 Both general population Jordan
3636

Acronym
PAQLQ

Description
Interviewer or self-administered questionnaire designed for children aged 7 to 17 years of age. includes 3 domains : Symptoms (10 items), activity limitations (5 items--3 are individualized), emotional function (8 items). Also includes three individualized questions, in which the patient identifies activities which are limited because of asthma. The patient is asked at each subsequent visit how much s/he has been bothered by each of these three activities.

Area of assessment
Quality of life.

Condition
Pulmonary.

Age Group
Child/adolescent- 0-19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Hai, R. A. 2010 8 - 16 Both Asthma Egypt
103

Acronym
SCS

Description
The SCS scale includes two subscales, namely, religious and nonreligious coping strategies. The religious coping strategies subscale assesses the individual’s attitudes toward religion and belief in God, which can lend credence to finding meaning and purpose in life. The nonreligious coping strategies measure the humanistic coping strategies. These strategies enable individuals to connect with their inner selves, acknowledge their strengths, find peace despite adversity, and achieve social support, which can provide the ability to go beyond oneself through self-transcendence (Baldacchino & Buhagiar, 2003).

Area of assessment
Beliefs, Knowledge/attitude, Mental health, Quality of life, Spirituality / religion.

Condition
Psychiatric.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Cruz, J. P. 2016 mean age 56.63 15.24 years Both patients undergoing haemodialysis Saudi Arabia
60
Cruz, J. P. 2017 18 and above Both healthy Saudi Arabia
100

Acronym
USSQ

Description
Tool to evaluate stent-related symptoms and their effect on QoL .It consists of six domains, three of them being concerned with stent-specific matters (urinary symptoms, pain, and additional problems) and the other three assessing general matters (general health, work performance, and sexual matters).

Area of assessment
Quality of life.

Condition
Urogenital.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
El-Nahas, A. R. 2014 Both temporary unilateral ureteric stents and healthy 90

Acronym
SF-36

Description
A patient-reported survey of patient health The original SF-36 came from the Medical Outcome Study, MOS, done by the RAND Corporation. It consists of eight sections : vitality,physical functioning,bodily pain,general health,perceptions,physical role functioning, emotional role functioning, social role functioning,mental health.

Area of assessment
Function/disability/performance, Mental health, Quality of life.

Condition
Cardiovascular, Gastroenterology, Geriatric, Gynecology, Health, Hematology, Infectious disease, Intensive Care, Metabolic /endocrine, Neurology, Obstetric, Oncology, Orthopedic /rheumatology, Palliative, Psychiatric, Pulmonary, Rehabilitation, Renal, Urogenital, Women's health.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Alragum, S. N. 2008 55 - over Both Diabetes , healthy Kuwait
240 Free
Khoudri, I. 2007 18 - older Both ICU patients 3 months after discharge Morocco
145 Free
Mukhaimer, A. J. 2010 18 - 64 Female Not available Bahrain
258 Free
Guermazi, M. 2012 healthy Tunisia
130 Free
Khader, S. 2011 18 - more Both Healthy Jordan
511 Free
Coons, S. J. 1998 19 - 59 Both healthy Saudi Arabia
415
Sabbah, I 2003 14 - 60 and plus Both healthy people Lebanon
524
Hoopman, R 2009 18 - 79 Both healthy people Netherlands
10414
El Osta, N. 2019 60 years and more Both elderly people Lebanon
250 Free

Acronym
BD-QoL

Description
A disease-specific HRQoL questionnaire for Behcet's disease

Area of assessment
Quality of life.

Condition
Orthopedic /rheumatology.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Touma, Z. 2011 34 +/- 11 Both Behçet’s disease Lebanon
41

Acronym
EORTC QLQ-BR23

Description
The breast cancer module is meant for use among breast cancer patients varying in disease stage and treatment modality (i.e. surgery, chemotherapy, radiotherapy and hormonal treatment).It includes a Functional Scale- Body image, Sexual functioning, Sexual enjoyment, Future perspective .and a Symptom scales / items - Systemic therapy side effects ,Breast symptoms, Arm symptoms, Upset by hair loss . It should always be complemented by the EORTC QLQ-C30.

Area of assessment
General health, Perception, Quality of life, Sexual function, Symptoms.

Condition
Oncology, Women's health.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Awad, M. A. 2008 48.6 years +/- 9.9 Female breast cancer patients 3 months after surgery United Arab Emirates
87
El Fakir, S. 2014 48 +/- 16 Female breast cancer Morocco
Jassim, Ghufran 2020 Not available
Jassim, Ghufran 2020
Female
Female
with breast cancer.
with breast cancer.
Bahrain

Bahrain
239
239

Acronym
CDS

Description
The extent the patient is able to perform activities is assessed from the perspective of the caregiver. In quality of life questionnaires the experience of impairments, dysfunction or social handicaps can be formulated either in the actual mode (e.g. is the patient incontinent) or from the experienced burden perspective (e.g. to what extent is the patient able to control the discharge of urine and faeces voluntarily). In the CDS the level of care dependency is formulated from the experienced burden perspective.

Area of assessment
Function/disability/performance, Health service, Quality of life.

Condition
Family/caregiver.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Boggatz, T. 2009 Both o Egypt
37
Boggatz, T. 2009 older adults Both nursing home residents, home care recipients, non-care recipients Egypt
611

Acronym
CDS-P

Description
The extent the child is able to perform activities is assessed from the perspective of the caregiver. In quality of life questionnaires the experience of impairments, dysfunction or social handicaps can be formulated either in the actual mode (e.g. is the patient incontinent) or from the experienced burden perspective (e.g. to what extent is the patient able to control the discharge of urine and faeces voluntarily). In the CDS the level of care dependency is formulated from the experienced burden perspective.

Area of assessment
Function/disability/performance, Health service, Quality of life.

Condition
Family/caregiver.

Age Group
Child/adolescent- 0-19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Tork, H. 2008 children Both disabled and healthy Egypt
Europe
260
Tork, H. 2009 Both healthy Egypt
Germany
258

Acronym
CPQ 11-14

Description
Instrument for assessing oral health-related quality of life in 11-14 year olds.

Area of assessment
Quality of life.

Condition
Oral health.

Age Group
Child/adolescent- 0-19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Bhayat, A. 2014 11 - 14 Both school children Saudi Arabia
268

Acronym
DLQI

Description
The first dermatology-specific Quality of Life instrument. There are 10 questions, covering the following topics: symptoms, embarrassment, shopping and home care, clothes, social and leisure, sport, work or study, close relationships, sex, treatment. Each question refers to the impact of the skin disease on the patient’s life over the previous week.

Area of assessment
Quality of life.

Condition
Dermatology.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Ezzahra, L. F. 2010 38 + 14 Both psoriasis Morocco
94 Contact Author
Khoudri, I. 2013 36±14 Both inpatient and outpatient adult psoriatics Morocco
176

Acronym
EORTC QLQ-C15-PAL

Description
A questionnaire developed to assess the quality of life of palliative cancer care patients.

Area of assessment
Quality of life.

Condition
Oncology, Palliative.

Age Group
Adult- over 19 years

Literature on Arabic translation/validation of measure
Author/link to article Publication year Population Sample Size Access to measure
Age Gender Condition Country
Alawneh, A. 2016 Both inpatients with cancer Jordan
170
Alawneh, A. 2016 18 - older Both Patients and caregivers to participate Jordan
175


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Articles last updated: December 2020